DEBRA Butterfly children charity shop in Pueblo Bravo
Posted: Sun Mar 01, 2015 8:16 pm
DEBRA "Butterfly children charity shop" is in Pueblo Bravo next door to the Olive bar and just up from the Budapest Restaurant.
Established 9 years. This charity works on behalf of the Spanish families in Spain, although the charity is world wide.
Bric a brac ,clean clothes , bedding and small items of furniture always appreciated.
Fancy doing a bit of voluntary work for this charity or maybe raising money through your associations with different clubs etc then contact Anne Wyley 966718134 or call into the shop.
**DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB).
We're here to help and support you and your loved ones.
Address:
Avenida del Mar local nº2, Urb. Pueblo Bravo, Ciudad Quesada.
03170 Rojales (Alicante)
Telephone: 966 71 81 34
Email: [email protected]
Thanks to Spainjayne for this info
**
What is EB?
Epidermolysis Bullosa (EB) is a group of genetic skin conditions which cause the skin to blister and tear at the slightest touch.
Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wing of a butterfly.
Painful open wounds and sores form where this exceptionally fragile skin is damaged – in some cases, internal linings and organs are also affected. Complications as a result of secondary infection and extensive scarring are factors that people living with EB often have to face.
Tragically, certain types of EB can be fatal in infancy and others are severely life-limiting. We estimate that there are more than 5,000 people living with EB in the UK, and 500,000 worldwide.
EB may be inherited in either a dominant or recessive form. In dominant EB, one parent usually carries the gene and is affected by the condition themselves, while the birth of a child suffering from the recessive form is usually totally unexpected since both parents can carry the EB gene without displaying the condition themselves. In dominant EB, there is a 50% chance of passing the disorder to children: in recessive EB the chance is 25%.
EB can also arise through a new spontaneous mutation – neither parent carries EB but the gene mutates spontaneously in either the sperm or the egg before conception.
Rarely, a severe form of EB can be “acquired” as the result of autoimmune disease, where the body develops antibodies to attack its own tissue proteins
Established 9 years. This charity works on behalf of the Spanish families in Spain, although the charity is world wide.
Bric a brac ,clean clothes , bedding and small items of furniture always appreciated.
Fancy doing a bit of voluntary work for this charity or maybe raising money through your associations with different clubs etc then contact Anne Wyley 966718134 or call into the shop.
**DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB).
We're here to help and support you and your loved ones.
Opening hours
- Monday- Friday 10am till 5pm
- Saturday 10am till 1pm
Address:
Avenida del Mar local nº2, Urb. Pueblo Bravo, Ciudad Quesada.
03170 Rojales (Alicante)
Telephone: 966 71 81 34
Email: [email protected]
Map and streetview
Thanks to Spainjayne for this info
**
What is EB?
Epidermolysis Bullosa (EB) is a group of genetic skin conditions which cause the skin to blister and tear at the slightest touch.
Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wing of a butterfly.
Painful open wounds and sores form where this exceptionally fragile skin is damaged – in some cases, internal linings and organs are also affected. Complications as a result of secondary infection and extensive scarring are factors that people living with EB often have to face.
Tragically, certain types of EB can be fatal in infancy and others are severely life-limiting. We estimate that there are more than 5,000 people living with EB in the UK, and 500,000 worldwide.
EB may be inherited in either a dominant or recessive form. In dominant EB, one parent usually carries the gene and is affected by the condition themselves, while the birth of a child suffering from the recessive form is usually totally unexpected since both parents can carry the EB gene without displaying the condition themselves. In dominant EB, there is a 50% chance of passing the disorder to children: in recessive EB the chance is 25%.
EB can also arise through a new spontaneous mutation – neither parent carries EB but the gene mutates spontaneously in either the sperm or the egg before conception.
Rarely, a severe form of EB can be “acquired” as the result of autoimmune disease, where the body develops antibodies to attack its own tissue proteins